Hayes and I just returned from Charlotte for his one week doc band follow up.
We got his doc band on March 12 at 9:30 a.m. We spent a few hours killing time in Charlotte and having lunch with Katie again. (Thank you, Katie, for always coming to entertain us!) And then we went back for his quick little follow up to make sure that the doc band was fitting properly. It was! Thank goodness. We had a doc band that fit and we were going to take it home with us!
wearing his adorable Anavini super hero john john from She She Made
Over the past week, things have gone really well. The doc band is very light weight and it doesn’t bother Hayes a bit. He actually acts like he doesn’t even know it’s there.
For the first two days, I had to take the band off of him every three hours to do “skin checks.” I was checking for red spots. If I saw a red spot, I was supposed to leave the doc band off of him for an hour- or until the spots went away. But if they weren’t gone within the hour I needed to call Cranial Technologies and let them know.
The first day, there were a couple of tiny spots, but they faded within 10-20 minutes. The second day there weren’t any spots at all. The band is a really good fit.
He was pretty sweaty for the first couple of days, but he got used to the extra heat, too. And I haven’t been putting socks on him, so I can help keep his overall body temperature down. It has really warmed up in Columbia, so he has just been dressing cooler in general. I just want to make sure he’s comfortable and doesn’t get too hot.
Hayes did great when it came to sleep. He has adjusted so well and hasn’t been affected by the band at all when he sleeps. I’m so thankful now that he has it and I know his head isn’t going to continue to get flatter while he sleeps.
But, guess what. He’s now sleeping on his stomach! He’s such a rascal!
And guess what else. We received notification that our insurance is going to cover the cost of the band. So, as far as we know, we’re in the clear there. We could not be more grateful and are so thankful to God for taking care of us in this way.
We had our first follow up this morning in Charlotte. I scheduled a really early appointment, so Hayes and I could go up to Charlotte and get back in time to pick up Hudson from school. His appointment this morning was at 8:15 (it’s a 90 minute drive) and we were back home by 10:00! Having an early appointment helps it to not completely disrupt everyone’s day and I’m glad to have it out of the way.
His head has grown 2 millimeters in the last week. And we compared his little head mold to his current head shape and we can already see a lot of improvement. I’m very encouraged with the progress. Especially since he is already 10.5 months old and improvement is supposed to take longer when they get older.
We’ll go back to Charlotte again in two weeks for another adjustment and measurement. I’m so thankful that Hayes is such a laid back, easy going kid. He just rides up there and babbles to himself. He takes a bottle and then takes a nap. He’s such a trooper.
It sounds strange, but with him doing so much cruising and standing on his own these days, there are lots of tumbles and falls. The band has really come in handy. It’s his little crash helmet!
I’m sure some people are curious if we plan to have his band decorated. I’ve actually just started looking into that. A local friend of mine has given me some tips based on what she did for her son. I was concerned about having it painted because I didn’t want to commit to a certain design – and then have it take away from his little outfits or just become something that we are tired of. But my friend recommended a woman who makes decals, and you can switch the decals out for different outfits, holidays, etc. I think I just want them to say “Hayes.” Something simple, but still cute.
I plan to do a little doc band update with each appointment, so we can document the progress for ourselves and for anyone else who is interested in how things are going.